Scarlet Update #2

We finally got the results for what type of diabetes that Scarlet has. It took 10 weeks and is indeed neonatal, she has a gene mutation that has led to it. Everything pointed to that but they needed to do the genetic testing to make sure. Next to no weight gain the last month in the womb, urinating A LOT, somewhat cranky over all but not horrible. The one thing that I would say sticks out is that she didn't smile real easy. She'd give a twitch of the lip but to REALLY smile and laugh, she rarely did that. She was sick almost all the time, she might have went a week at time without being sick. Her body just got to the point that it couldn't handle it anymore and when she got the flu from Teagan at 7 months it caused her ketones to build and sent her into a diabetic coma. I'm going to take a guess that it took so long due to the type of neonatal diabetes that she has. There is a 1 in 300,000 to 500,000 chance of neonatal happening so it's very rare and for being so rare there are 5 different types! She has the type that could possibly be temporary, but it's rare that it is temporary. I guess the typical age is around 18 months to 2 years that it goes away if it is temporary. But it could possibly come back when she gets older; it would act as type 2 diabetes. So it sounds like to me her body may still be making some insulin, unlike type 1 diabetics. If she were to ever get pregnant she would have gestational diabetes, of course that's only if it were temporary. She could possibly end up on an insulin pump if it doesn't go away. Even if it is temporary she will need to keep track of blood sugar her whole life.

She is such a happy little girl now! The only time she really has issues is when she's teething and sick, or gets her shots and is teething. Those two instances have triggered ketones. Then she's pretty cranky. Erika and Blake have done an absolute wonderful job with managing the diabetes. You learn to play with the long lasting insulin a bit if you know it's going to be an active day the next day. Give a little less so there's sugar to burn and then the sugar doesn't get near as low as it would have otherwise. Scarlet went to the babysitter at 160 the other day but by the time her morning nap came and went she was down to mid 50's! The babysitter then gives her food that will bump her sugar back up. It really doesn't take a lot though! Except, as in instances mentioned above, she rarely even needs the short lasting insulin. Probably because of the type of neonatal diabetes that it is.  Below is one of my favorite pictures so far! She is so HAPPY!!! (She's the black and white dress)